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Understanding the Physical and Psychosocial Impacts of Pyruvate Kinase Deficiency: Patient-Led Development of the Pyruvate Kinase Deficiency Life Phase Model

Understanding the Physical and Psychosocial Impacts of Pyruvate Kinase Deficiency: Patient-Led Development of the Pyruvate Kinase Deficiency Life Phase Model

This study is a patient-led interview research conducted in collaboration between Agios and a multidisciplinary group of patients, advocates and clinicians. This group was founded and funded by Agios Pharmaceuticals.